Just As it Should Be

About ten days ago, I walked-rolled through my front door. My front door is still a mess; I can’t lock it well. I can’t go out because my left leg is still weak, and I’m playing catch-up here at home. It could be worse. 

What I noticed was how everything seemed shorter, as I was able to stand up again. The sink, the toilet, closet shelves, and the bed! For someone who must live in a wheelchair the rest of their life, the world is seen from a different angle. When I was using wheels, it seemed normal, and when I stood up again, my world changed.

The physical therapist just left. I have to climb the stairs differently, do some chair exercises, and all of this is to build strength.

When I went to the surgeon, I saw that it was a busted femur with two long screws inside. OK, that makes sense. I’ve been so out-of-whack that my logic hasn’t worked well. Painkillers mess you up. These painkillers don’t work like they used to. 

Back to playing catch-up. The only way I know to do this is to do one project at a time. Next are the taxes and finishing up a project that began in early February. I’m hoping to get these done this week, along with the normal stuff.

Why is it that when our lives get interrupted, it is hard to hold the focus on where we were? Maybe because where we were isn’t quite where we left it. Stuff moves around, and we move around, and we change. My kerplop on the landing, by its necessity, moved me into new territory.

This is like the funeral bubble, and kind of not like that bubble. The difference is that you don’t go to thin places—you go to new places of self-understanding. This time I’ve grown, and I’ve experienced an area of disability that I’ve learned from.

The first night I was there, the nurse got in my face and said, “You can do this.” Well, of course I can—I must. When I think back on all of it, I must have looked really scared. She was using a wheeled device to transfer me to the toilet. I was irritated by her telling me what I knew I had to do. I did set about doing it. Not rapidly. As I gained confidence that I could do a spin on one leg and not fall, I picked up my momentum. Then dressing became easier, and so did other things. 

People often say that the disabled are courageous, and maybe there are times that we are showing courage. For the most part, I believe that our acts are a part of daily living, and this is what we need to do to survive and live our lives.

Maybe there are “please do’s” for the disabled that I should list here. Just as with grief and loss, there are some helpful things you can do for us.

Do:

Allow us to do what we do normally. Things like crossing the street are second nature to low-vision and blind people. If you see someone in a wheelchair who can’t reach an item high on a shelf, ask if you may reach it for them. Do ask, and if you don’t know about a specific disability, ask us if we can explain things. Sometimes this is doable, and at other times it isn’t welcome. Use common sense. Be polite and, above all, accept the answer given. It is also OK to tell us you’re asking because you’d like to become informed. Can we refer you to a good source? With a phone it is simple to jump to a website.

Teach children how to interact with all diversity. Kids pick up queues from adults. When adults can teach proper manners and behaviours, kids learn. Kids want to be smart.

Don’t:

Don’t try to force us to do something. Being helpful also means that the person needs to do the simple things him- or herself.

Don’t rush someone. You might be able to do it faster, but it feels awful to be made to feel like you need it done to suit your own pace. I’ve had people do this with me, and it feels degrading. 

If you think it is rude, don’t do or say it.

If you mock, your children will mock, and in the long run they’ll be seen as ignorant. Kids want to be seen as fitting in appropriately.

I’m home with a new way of thinking—just as it should be.