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Posts tagged ‘Living with disability’

Jul 23

Reflections, Part 3

Note: The Church of Jesus Christ of Latter-day Saints is also known as the Mormon Church. Therefore, I’ll use the name Mormon in this post. For definitions of terms included in bold type throughout this post, please see the Definitions section at the bottom.

I’m nine years old, and I’m sitting in the middle of the chapel at the Irvington building in Fremont, California. I’m a Mormon girl with low vision and hearing loss. It’s a Wednesday afternoon in 1968, and the chorister is teaching the senior primary children a song about the earth, and how Heavenly Father created it for us, and there is all this nature being described in the song. All I can think of is, I’m not like the rest of the kids in this room. I don’t see and hear like they do. I think a seed got planted that day: my exit. For me, this was not an odd way for what played out in my Mormon membership to begin. It was such a simple and subtle act.

How, at the age of nine, might this have happened? Mormon doctrine on the disabled is, I think, something the church—like with race and the priesthood—would rather forget and bury deep. The problem with this is that once you see it, you can’t unsee it. It hits you in the face like a bold neon sign that reads: “It’s OK to hate these people.” Here is where you can focus your anger and hate, and here is where you are allowed to create the most vicious of theodicies: they got what they deserved for being fence-sitters in the previous life. If race doesn’t get you, being born with a disability will. In many ways I had to come to the second half of life (see Falling Upwards by Richard Rohr) rather early. I understood at age nine that something was terribly wrong: I didn’t have the words for it at the time, and yet I knew. It felt like the unscratchable itch. So it goes with those of us on the margins within the Mormon Church. We are placed in a situation where we must think through some essential life stuff before we should have to be thinking in second-half-of-life terms. It forces us to come to a mature world view earlier than normal. We have to sort out our values and thoughts, and then come to an understanding of how life works.

When I was between ten and eleven years of age, I was told by three girls who claimed to be friends that they were no longer going to be friends. I saw it for what it was: bullying, and wrong in the sight of God. That day, after our primary class, they got told by me that I understood it for what it was: wrong. I left the church building in tears and walked to the car where my mother waited. The damage they inflicted was done even before they began to inflict the large-scale damage that would happen until I was eighteen. BUT, it was OK because I was who I was: disabled, despite my father serving as the stake president at the time.

My adolescence was spent in loneliness, as any time I tried to make a friend, these girls made sure it didn’t happen. They carried their actions into the schools we all attended. Eventually, I reached a compromise with my parents around church: Sunday was mandatory, and nothing else was required.

Yes, the parents of the girls knew. One family condoned it, the second must have ignored it, and the third, well, when the parents of that girl met with my father, they spent too much time apologizing to my father. They said they couldn’t change her thinking. It didn’t matter; I knew how people felt about me. Very few adults took the time to get to know me. The person who did became a friend for life. 

The damage this did to me socially was that during the years I should have been developing peer relationships, they were non-existent. I thought leaving town would help—it didn’t. It made it worse.

At what is now known as BYU Idaho, certain things are required. Church attendance is mandatory. By my second year studying there out of state, I was overlooked for church participation. When I asked our bishop why I hadn’t been given anything to do, or what Mormons term a calling, he replied: “Nobody asked for you.” I moved that next semester and kept quiet with study and a service sorority, sleeping most of the weekend. By the time I graduated with an Associate of Arts in General Education, I was depressed, twenty pounds heavier, and miserable. I needed the sunny place of California once again. While Idaho created environmental depression, getting back to California and home didn’t help much. It would take a huge change to fix the depression.

Church wasn’t working for me even though I tried. I really tried to be a good Mormon. I wasn’t happy in my life. When you’re raised Mormon, that is all you know. It’s a high-demand religion. Back in the 1970s and 1980s, Mormon was thought of as weird. And I didn’t know enough to explain it to the therapist.

The problem with being an adult woman in the Mormon Church is that you’re supposed to get married and start having babies. This is the entrance ticket to being viewed as a real adult woman. And full admission happens when you pop out a child. I know, it is strange. And all this is traditionally done as early as eighteen, and well before twenty-five.

Moving into my twenties and seeing family and others marry, I knew that marriage wasn’t in the cards. Not being wanted for service told me a great deal. Not being considered dating material also could be seen as “not good breeding stock.” This is a view accepted by many in society. However, disabled doesn’t mean defective. I knew it at the age of sixteen and had it confirmed to me as I moved into full adulthood.

I did serve a Mormon mission, returned, and found employment in Provo, Utah. I didn’t last a full year in Provo. I went back to California, and on to grad school for a master’s in clinical psychology. I knew from a young age that I needed to work, as I wouldn’t be baking bread and popping out kids. I’d wanted to pursue a degree in clinical psychology in my teens. I was drawn to the work of doing therapy.

After graduating, I met Jon, and we married five years later. In January of 1999, he made the official move to Germany, and I followed in February of that same year. We settled into church and life in Europe. The Germans in Bavaria are surrounded by lovely mountains, and we lived in them. Jon set up a little website that we called An alp of our own, and we maintained the site while we lived there. I loved the stars and the night sky. It was, as one church member said, “Heidi country.”

We moved to The Netherlands in April of 2000 and settled in the eastern part of the country. Good-bye, stars—and hello, flat land. It was six years later that things began to change for us churchwise.

All this time, little seeds were dropping in my life. It was time to realize that things were changing.

Jon began reading and learning about what we’d been taught our entire lives, discovering that what we were told was wrong. He struggled with what had been withheld. I put off listening at first, until I heard another woman say that to support the marriage, she needed to stand by her husband and understand what he was saying. That comment made me think about how not learning could hurt our relationship. There is no harm in learning what one’s partner is learning. In 2008, I knew I needed to listen to what Jon was learning, and so, my own journey began while talking with him and doing laundry up on the top floor of our home. I remember looking out the window and hearing him talk. I realized the truth of the words made me more sad then angry. Down the dark rabbit hole on the slippery slide I went.

Next week, I will explore what I found inside that rabbit hole.

Definitions:

Primary: The Mormon organization for children, split into junior (ages three to seven) and senior (ages eight to eleven).

Mormon doctrine: Mormons believe that we came from a previous life known as the pre-existence, where we had to choose to follow Jesus or Satan. Whites were valiant and born white; blacks were fence-sitters and did not take a side readily but were allowed to come to earth and get a cursed body. This doctrine changed in 1978. The disabled were lower than the blacks and begged for a body—even a disabled one—so that they could get to earth. The exception to this is Down’s syndrome children: they were the spirits that kicked Satan out of heaven, and so to protect them, God made them Down’s children.

Fence-sitters: See the above note on Mormon doctrine.

Stake president: Comparable to a diocese, a stake consists of eight or more congregations called wards. The stake president presides over all the wards in his stake.

Calling: An assignment of service that is given to adult members. You can serve anywhere in a ward or stake to help the organization run smoothly.

Environmental depression: This was discovered in 2010. It wasn’t dealt with as such before then.

Jul 16

Reflections, Part 2

Read Part 1 here.

The healing journey.

In July of 2023, I got sick. I wound up in the emergency room of the local hospital, and my kidneys were shutting down. They were at twenty percent function. I was disoriented, scared, and really not understanding how bad it was. At one point in the process leading up to my hospitalization, I became so confused that I couldn’t figure out how to get out of the bed. I couldn’t even think to turn the light on. That is sick, and that is scary. I found out after things settled that this is common for people facing this type of shutdown. Back to the narrative. A friend finally convinced me to call the doctor, who came and had me admitted, and by then it wasn’t good at all.

I was in the hospital for a week, and then a taxi took me home. I was disoriented coming out of the place because the hospital I was in was new, and I hadn’t seen it before. With low vision, this is a real issue.

I walked into my house, sat down my bag, walked to the sofa, and let out the tears. I sobbed, and then listened as my body and mind told me it was time to heal. It was time to do the work that led to healing all of it. All the trauma I’d stuffed. I had some therapy of my own to do, and it was time to find the therapist who would travel with me as I called the people to the encampment of the battleground. Funny how it works. It took another ten months to get to May of 2024, and to begin the intense work of cleaning out my mind and moving forward.

The healing process is an interesting thing. I’ve seen people who come to me and aren’t ready to do the work, and so they run away rather than to what can help. Others believe that grief and loss can be worked through in six easy sessions, and that there is a magic formula that the therapist can dispense. The fact is that this is a soul journey. It is a journey of the mind, the heart, and the spirit, if you will. It leads us to someplace else, and that someplace is the place of wonder and, ultimately, healing, such as it is.

On August 29, 2016, I sat at my dining table and looked at the lights that had been installed so that I would be able to see in my home. I wondered just how I, a woman with low vision, would be able to survive in a country where my limited Dutch would only get me so far. The only thing I knew at that time was that I couldn’t and shouldn’t make any major life decisions for a year. That is something my father had told me, and it was wise counsel.

And so, the journey of healing and discovery began that day, and in many ways it will never end. We may work through our grief and loss: we’re changed by it all.

The social system here set me up with someone to clean the house. At first, my then church came with meals until I realized I needed to cook for myself. If I needed to not work because I was compromised, I needed to do something for myself. I needed to let the process of grieving take place.

On Friday the thirteenth of January 2017, my mother died of a heart attack. We’d giggled, grown together, and experienced the death of my younger sister Joyce together. My mother was also an eight on the Enneagram. We understood this shared experience in life, and she taught me things despite not knowing about her beloved number. She just did life well in many ways. Because of where I was in the process of grieving Jon, I didn’t see and get fully the fact that my siblings telling me not to fly over for the memorial service was really bad advice. I’ve regretted that, and would do that one differently if I could.

By June of 2017, I felt ready to plan a trip to the US to see family and a friend. What I didn’t know then was that the trip would change the course of my life.

In late July of 2017, I flew to Salt Lake City to see some friends of Jon’s and attend a conference called Sunstone. At the conference I ran into people who were not Mormon, and it flipped a switch. I felt, and knew, that I had to check this other church out.

I then went to Oregon to visit another friend, and travelled on to California to see my family and visit the beach.

Staying at my brother’s place first and then moving on to my sister’s place was interesting. At the time I didn’t know it would be the last time I’d see both of them alive.

We made some good memories, and my sister and sister-in-law insisted I take my mother’s green quilt home. Now, they know of my love affair with blue. That green quilt would cause me to do a total room makeover. I painted the room blue, purchased a new bed that was blue and that the quilt would fit on, and realized that I had the piece of my mother that loved green. It has turned out to be one of the things I enjoy seeing, and it serves as a link to her and the love she had for me.

That trip also created a memory of my sis that I could never have done without her help. She got me on the flight with five boxes for less than the price of five extra boxes. I stood there at the airline counter, shut my mouth, and watched in amazement as she talked to the guy. I know when to shut my mouth. So, that quilt and other things came with me to be with me here in my new life.

The trip to the US changed my ability to sleep. In that first year, everything sleepwise changed. I didn’t sleep at normal hours, and family would question me as I called in the wee hours of my Netherlands morning. “Gail, what are you doing?” Well, when I can’t sleep, I call you.

Planning for the anniversary of his death had taught me that if I thought about it in advance, I could maybe, just maybe, control the tears and what would happen. It worked well for year one and failed for year two. What I really learned was that with the body, what we’re grieving will push its way to the surface and force itself on us in ugly ways. The life lesson: let go and don’t try to control what needs to happen. Healthy grief lets grief drive the process so it can heal. Even if grief must be put off because of life that must be done, it will surface, and when it does, embrace it!

What I’ve learned about the first two years of loss are that the tears change in quality and quantity. Looking back eight years, I can see all of the journey better now. How different it was and now is. In letting it all go, I freed myself to trust the grief process in ways that opened my heart and mind to healing, and because of that, I was carried to where I am now. July of 2023 had to happen so that I could write this in July of 2026. I see that now, and that is one of the huge things this journey has gifted me with. Wow, what an amazing place I’ve gotten to!

Jan 1

It Pays to Rethink Things (Revisit)

This post was originally published on November 28, 2023.

26 April, 2023, is the day I spoke my truth for the first time. I wrote about in “When Sanctuary is Offered.” I meant every word then. Really, I did. I was also willing to give up the social life that was so destructive to my mental health.

27 November, 2023: the day my hearing deficiency was dealt with.

I don’t do 9:00 a.m. appointments. If I have to walk, take the bus, and be out of the house that early, it doesn’t work. I’ve set that limit with people. Today I had no choice and arrived ten minutes late. As it turned out, 9:30 would have been soon enough. The Monday chaos of gathering, prepping for the day, and being ready for the first clientele was interesting, and frustrating, to watch. Oh well, with my morning caffeine in me, I walked into the room. I had an agenda: better hearing aids that would be covered by the insurance. I had a list of requirements. Was I nuts? I’d soon find out.

An intense trio of hearing tests confirmed my suspicions: I’d lost a wee bit more hearing. I wasn’t shocked by the news, as I was prepared to hear the number. What I wasn’t expecting was what happened next. 

I love the “gadgets” that I’ve worn for seven years. I’ve put off getting new ones because they were the best! Well, they were the best until they weren’t, and I finally broke down and made the appointment at the ungodly hour of 9:00 in the morning. UGH!

If one has to do the unthinkable, then I advise a list of the absolute requirements. If those can’t be met, don’t do it. This is how the second half of the appointment began.

The new ear molds had been made. My ears are even petite. First item: Are these things covered? Yes. OK, let’s move on. I want the chargeable, and not the battery, type. Now, here’s the crazy part. If you go with batteries, the insurance will cover some of the cost. At 90 euros per box, and a three-week battery life per set, you will go through some boxes. I’ll buy the charger, thank you. Personally, I think the insurance didn’t think that all the way through.

Moving forward: What can you do for my hearing in a social situation? How about a microphone that does a couple of things? It will link with your desktop, and it will serve as a microphone when you need to talk with someone in a densely populated social setting. I WANT!!!! The insurance covers it. Oh yes, I’ll do it. This is the answer to multiple issues. 

By now, I’m feeling like I just had Christmas, and Santa answered my every need and want. It is true that I just inherited more chargers that will replace the ones that will be given away, but it’s a good trade-off.

My bag had three boxes in it when I left some two and a half hours later. As I walked home, I noticed the feeling of gratitude that I was feeling and took the time to honor it properly. As the gentle rain hit my umbrella, I had to focus on the path I was on. My heart was full, and as I entered my home, I was excited to try out the new gadgets. I cried when the mic put the sound into a better hearing place for me. I was calm, relaxed as the stress of listening changed from difficult to much better. 

Tomorrow is Giving Tuesday. It is a day when people in the US give to charities. While I do have a co-pay on this new hearing aid, it is not what I would have needed to spend had the insurance not covered things. 

I have no more words for what happened today. They aren’t needed. The gratitude that I feel for what I have sitting in my ears is goon enough.

The sun set around 4:30, and I’m thankful to be in a warm house. It is time for some dinner and a relaxing evening. I need to start thinking social again. Yes, I just said I’d socialize again.

Sep 23

1 Comment

Dear Helpful Soul (Revisit)

Originally posted on October 24, 2022.

Dear helpful soul,

I realize that when you see me at a street crossing, you want to take my arm, tell me it is clear to cross, or even help me to cross the street. Your kindness, while well meaning, is not appreciated. I’ll explain why this isn’t helpful, or needed.

I’ve been living with disability my entire life. For many within the disabled community, this has been our situation. For some who are disabled because of illness or injury, this is not the situation. Their journey into disability might be more traumatic. They may slowly lose function in an area of their body, wake up one morning to the horror of lost capacity, or find themselves in a hospital bed with a missing limb. Many of us, if not all of us, within the disabled community deal with trauma surrounding the disability, and some must cope with ongoing trauma due to a gradual loss of even more function. Imagine someone with Usher Syndrome, who faces this on a daily basis. When sight or hearing can disappear, or you watch as you see less each day, or can’t tell what is gone until there is a radical difference, it is traumatizing.

Trauma may look different for the disabled. Please, ask and listen to understand. Someone may seem to be reacting abnormally when it is normal for their circumstances. When someone lives with ongoing events that are traumatic, and treatment for the trauma doesn’t completely solve the problem, cut them some slack. They may need it.

In most of the above situations, the journey of learning to live again may take a person to a rehab center. My journey into a rehab center began with the realization that I’d lost more vision and couldn’t see as I once had been able to see. I was down to twelve percent of my vision. For me, rehab was about learning better ways of doing things, using less of my vision, and confronting myself in a new way. I’d spent most of my life trying to fit into mainstream when I didn’t fit into a mainstreamed situation. I had to come to an understanding that now, more than ever, I had to embrace new ways of doing most things. When I think of leaving my home without my cane, I cringe and know I’m not safe without it.

Why do I need a cane? At first, I thought the need for the white cane was to enable me to navigate tricky spaces. I understood that I needed the help at night, but why did I need it in daylight? The longer I used the cane, the more I became aware of a few things. The cane let me sense areas to stay away from, such as sand or gravel. Both sand and gravel do not allow me to feel what I need to feel underfoot. I need to avoid both sand and gravel because I could slip and fall. The same scenario goes for ice and snow.

The cane also serves as a warning to others that I’m not going to see you clearly. I may not see you at all because you are out of my field of vision. People need to be prepared to take evasive action to get out of my way! This brings me to my first gripe: anyone on their phone and not tuned into their environment. Do you want me to collide with you? No, you don’t. Prevent this by walking with 100 percent of your attention on the task of navigating the space you are presently in. Having had several close calls with people who have been inattentive to their environments, I know it would be appreciated by so many. We don’t want to injure you or become injured by you. While you may not be driving, you are navigating spaces, some of which are very crowded. Please look out for oncoming people because if you don’t, someone might say something like “Watch where you’re going!” to you. They’re correct in saying this to you! Your phone can wait, and if it can’t, then move to a safe space to focus on what you need to do.

If you feel I’m being harsh, I’m attempting to protect myself in an environment that isn’t always friendly to me because I can’t see everything.   

Offering Assistance

Here’s some handy advice on assisting those with visual disabilities. You’re at a street crossing where there is no signal. You can see that the traffic is nonstop (the visually impaired person may be using their hearing to know when to cross). You also see that there are gaps that would be difficult for the disabled person, even though you could make it to the other side rapidly. You could make the offer of assistance in this way: “Wow, this traffic isn’t going to slow to let you cross easily. Would it be helpful to you if I assisted you to make a faster crossing to where we need to get?” If they say yes to this question, ask them how they want you to walk with them. This approach places the disabled person in the position of accepting or declining, and it comes with a reason for the offer. It is good help that may be very much accepted and causes us to accept the offer because it isn’t a rescue, allowing us to remain dignified—and that is a win for everyone! If we’re at a signal with a walk feature, we don’t need your help.

Speech and Hearing

Imagine not being able to hear clearly. When you can’t hear clearly enough to distinguish a D from a T or and S from an F, or other consonants and vowels, the life of a hearing-impaired person becomes stressful. 

Imagine trying to spell words that you can’t hear properly. Imagine not being able to pronounce those words properly. Add the challenge of uncertainty when you’re not sure if the word you heard spoken was “who” or “shoe.” The conversation becomes draining, confusing, and if you’re in a crowded room, it can become difficult. Social situations can become a challenge. For those with a hearing loss, the issue may be about isolating as best one can. 

While at the rehab center, those who dealt with the added hearing loss gave voice to the difficulty of hearing in the crowded dining area. I spoke with staff about not being able to enjoy the mealtime, and the need to engage in conversation at the table. No one had spoken up about this issue before. I was asked for solutions. First, I was isolated. That didn’t work. I didn’t want to eat alone. The next step was to ask others in this situation if they were experiencing this. “Yes, I am!” This was the common response. The next step was to reserve a table for us. This table was on the edge of the dining area. Nope, that didn’t work. Then they put us on the other side of the space. They were hoping the distance would solve the problem. Distance didn’t work as the noise trickled into our space, and it was difficult to filter it out. When I left, they were still working on the situation.

I’m faced with the fact that I need to semi-isolate in social situations or avoid them altogether. I’ve tried it both ways, and enclosed social situations with heavy noise levels are a pass for me.

I’ve been in The Netherlands for over twenty years now. I’ve tried to learn to speak and hear Dutch. It has been a challenge to learn a second language with a hearing loss. For the most part I try my best to converse in Dutch, and for the most part people are polite. Then there are the ones that judge and condemn. I’m told it is my fault that I can’t speak this language fluently at this point in my residency. The people who respond to me negatively are few in number, and to them all I can say is that given my situation, I do my best. Don’t judge until you understand that hearing is my challenge.

So, helpful soul, please listen for understanding. Understand that I know what I need, and above all treat me, and my disabled brothers and sisters, with respect. We’re having to face this every time we step out of our front doors. Cut us some slack, please.

Apr 9

Just As it Should Be

About ten days ago, I walked-rolled through my front door. My front door is still a mess; I can’t lock it well. I can’t go out because my left leg is still weak, and I’m playing catch-up here at home. It could be worse. 

What I noticed was how everything seemed shorter, as I was able to stand up again. The sink, the toilet, closet shelves, and the bed! For someone who must live in a wheelchair the rest of their life, the world is seen from a different angle. When I was using wheels, it seemed normal, and when I stood up again, my world changed.

The physical therapist just left. I have to climb the stairs differently, do some chair exercises, and all of this is to build strength.

When I went to the surgeon, I saw that it was a busted femur with two long screws inside. OK, that makes sense. I’ve been so out-of-whack that my logic hasn’t worked well. Painkillers mess you up. These painkillers don’t work like they used to. 

Back to playing catch-up. The only way I know to do this is to do one project at a time. Next are the taxes and finishing up a project that began in early February. I’m hoping to get these done this week, along with the normal stuff.

Why is it that when our lives get interrupted, it is hard to hold the focus on where we were? Maybe because where we were isn’t quite where we left it. Stuff moves around, and we move around, and we change. My kerplop on the landing, by its necessity, moved me into new territory.

This is like the funeral bubble, and kind of not like that bubble. The difference is that you don’t go to thin places—you go to new places of self-understanding. This time I’ve grown, and I’ve experienced an area of disability that I’ve learned from.

The first night I was there, the nurse got in my face and said, “You can do this.” Well, of course I can—I must. When I think back on all of it, I must have looked really scared. She was using a wheeled device to transfer me to the toilet. I was irritated by her telling me what I knew I had to do. I did set about doing it. Not rapidly. As I gained confidence that I could do a spin on one leg and not fall, I picked up my momentum. Then dressing became easier, and so did other things. 

People often say that the disabled are courageous, and maybe there are times that we are showing courage. For the most part, I believe that our acts are a part of daily living, and this is what we need to do to survive and live our lives.

Maybe there are “please do’s” for the disabled that I should list here. Just as with grief and loss, there are some helpful things you can do for us.

Do:

Allow us to do what we do normally. Things like crossing the street are second nature to low-vision and blind people. If you see someone in a wheelchair who can’t reach an item high on a shelf, ask if you may reach it for them. Do ask, and if you don’t know about a specific disability, ask us if we can explain things. Sometimes this is doable, and at other times it isn’t welcome. Use common sense. Be polite and, above all, accept the answer given. It is also OK to tell us you’re asking because you’d like to become informed. Can we refer you to a good source? With a phone it is simple to jump to a website.

Teach children how to interact with all diversity. Kids pick up queues from adults. When adults can teach proper manners and behaviours, kids learn. Kids want to be smart.

Don’t:

Don’t try to force us to do something. Being helpful also means that the person needs to do the simple things him- or herself.

Don’t rush someone. You might be able to do it faster, but it feels awful to be made to feel like you need it done to suit your own pace. I’ve had people do this with me, and it feels degrading. 

If you think it is rude, don’t do or say it.

If you mock, your children will mock, and in the long run they’ll be seen as ignorant. Kids want to be seen as fitting in appropriately.

I’m home with a new way of thinking—just as it should be.

Jan 4

The Tram

I’m standing on the inbound platform at the UMC station as the tram pulls in, and I board. The tram isn’t full, and I find a seat facing forward, not too far from the doors. I notice the quietness of the tram, and we pull away. The next stop changes everything.

I’m in what is the medical area, and the science park. The med students board, taking every vacant seat and filling the vacant standing areas. The next stop allows for more students to board, and the tram is filled with the chatter of the students.

I’ve taken this tram ride multiple times, and this time I stop to notice the voices, the animation with which the students are speaking. Then I look at the physical behavior of the passengers. They are alive with excitement, enthusiasm, and hope, and it is catching. For the first time I’m noticing the vibrant nature of the students.

Something tells me to stop my thinking, and to watch carefully. I listen to that suggestion and I quiet my mind to listen and observe what is happening around me. That 20-minute tram ride altered how I think about others in group settings.

Normally, I avoid groups because it is chaotic, and I can’t hear others well enough to converse with them. I wrote about this in “When Sanctuary Is Offered.” As I’ve sat with this experience the past few months, some things have changed.

Could it be that I opened up to some type of new understanding? Did I rethink the present hearing aids I have? Was it a combination of things? I realized that things needed to change and I took steps, and some risks, to change things. It pays to rethink things: it did!!!

With the new gadgets approved and all mine, I will venture into new situations. With an appointment at the UMC this month, it will be interesting to experience the ride on the tram in a new way.

I’m also having a new doorbell installed in my house. It will use light, and not sound, to let me know that someone is at my door. No more missed doorbells for me! Oh, and it’s covered by the insurance!!! As mentioned in a previous post, I went shopping for a better hearing situation!

I hear the noise of the organics being picked up and pause to think about the winter winds that blew all the leaves in the universe into my front yard space. I think about the storms that put it all there, and the storms that have blown unpleasantness into my life due to disability. I recall the time when I asked Jon to answer the question of the one gift he’d give me if he could. I still feel the same way about my body. Why would I want to change my core self? Yes, it would make some things easier. It would mean that I would not need to deal with people who show frustration at the way I do things: slower than they can do the same thing. I am happy with who I am. I’m proud to advocate for those with disabilities. I’m proud to be me. It isn’t my issue; it’s yours if you can’t deal with me as a disabled person.

Once we’ve taken an inner journey and done our soul work, things change. Going inside is liberating!

This time around, the work I had to do to get to new hearing aids wasn’t as intense as other things I’ve done.

How do you know when you’ve done enough work? My experience is that the things that were hard or difficult become easier to deal with. Doing the work wipes out a level of fear that can be present when confronting the nasty and the unknown. In this phase of things, and when dealing with our lives in new ways, it is important to tack a mental reminder up: one byte at a time. I think this isn’t something we all start out doing at first; it is something we learn our way into.

Taking it slowly and not being overwhelmed by things isn’t something that comes easily for some of us. We labor under the misguided notion that we can take it all on at once. Then getting overwhelmed by the task before us hits us with a grand force of wind. POW! Sometimes anxiety builds, and we stop it all, only to discover that we’re not where we want to be with any of what we’ve dealt with.

Going inside myself enabled me to flesh it all out. This time, I’m navigating a new stretch of the river that I’m surprised I’m on. I suspect it has some new places to tie my boat up to, to leave, and to explore the new interiors I’ll engage with. I suspect that this part of the soul journey will bring new things, people, and joy into my life.

I return to the tram, and as I watch and listen, I realize that I’m learning something about myself that I haven’t been able to admit as I’ve needed to: the isolation of my hearing situation must come to an end. I’m not the widow who is sitting alone on the tram. I am the widow who is claiming the life she knows is out there in new ways. I’ll risk large groups. I now have a tool that will enable me to do just that.

This all happened because I became quiet in what I once viewed as chaos. Had I not done that, I wonder what would have happened. Time to muse on this experience some more.