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Posts tagged ‘Life’

May 22

Putting the Sledgehammer Away

The last few days have been filled with tears, meditation, looking inward at the past, and realizing where I am in the present. Growth can hurt deep down. Growth is progress that we achieve because of the price we’re willing to pay for it.

I’ve spent fifty years pointing out how those of us in the disabled community need to raise our voices more and speak loudly—and boldly. Last week I authored a post about my experience in a crowded room. My friend Karen read it and told me that she felt as if I were plagiarizing her. How often has this happened to each of us? We come together and discover that our life experiences aren’t so different. The commonality of what we experience as persons with disability can be powerful. It creates bonding in ways nothing else does. It is a gift that I share with Karen, and with others.

“You too!!!?” While this happens all the time, the feeling that “I’m unique” is dispelled by finding out that no, once again, I’m not alone in the world. This realization is juxtaposed with the example of a child who thinks everyone sees as they do, but who knows deep down that they are “not like the other kids,” whether it be due to disability, being LGBTQ2S, or being a victim of abuse: the secret is out of the bag. Adulthood requires that we grapple with these issues.

There are times when our inner selves push each of us to stand up and fight for justice for ourselves or others. We fight to be heard, and to have our realities accepted. If we can’t fight, we’ll likely be trampled because we’re not always seen or heard. Sometimes in that fight we forget who we are; we fade to our unique gifts, talents, and insights. We become swept up in the fight for recognition. I’ve been in this place for forty of the fifty years that I’ve been advocating for justice and change and for listening to the marginalized voices.

This week it all came to a head when I was forced to look inward at where my journey had taken me. The work I desire to do now is more spiritual in nature. It is the work that honors where each of us are. Each of us are equal within this realm. It is not a place of the marginalized: it is a place of learning to love ourselves, and to accept our own authenticity.

This place is one that offers sanctuary to each of us. Here we stand on equal footing because it is our hearts and souls that are heard. In the realm of the soul and the heart, all are welcome, and all are equal at this table.

I spent two years becoming certified as a spiritual director. I spent time discovering the power of meditation. I’ve uncovered places in my heart and soul that have moved me in directions I would have not considered five years ago.

Some of this uncovering is due to my husband’s suicide. Suicide changes survivors. One of the changes is the questioning we must do around making assumptions of others and ourselves. Another change is that we come to understand that people can remove themselves from humanity in a matter of seconds. Some feel strongly that if we all feel a sense of belonging, we’ll choose to live. All of this becomes evident to us as survivors. It causes us to question old things in new ways. We see an old rainbow in a new way. It causes us to do a grand reframe of it all.

The paths we have walked no longer suit our needs. There is a restless feeling when we remain on that path. It is as if we’re binge-watching our life because we’re at a loss about where to go next. We want the old to work, but we know it won’t, and we must come to terms with the fact that we’ve outgrown the friendship, the relationship, the career, or our lives as we understand them. It is why some people shock family, friends, partners, and church members when they announce that they’re packing up and moving to that new place. “Where did that come from?” or “Wow, her death really did a number on him.” The reality is that for whatever reason, that life change was brewing beneath the surface, and the life-changing event was only the catalyst to promote action.

I’ve heard the “if you hadn’t gone to a therapist…” If I had not seen my first therapist, I would have never begun the self-exploration that I needed to do in my early twenties; it was the beginning of my soul work. I would have continued to believe that everything would be alright and settled for coasting through life.

Life isn’t a straight path. Life is bumpy, strewn with twists, bends, and curve balls. We’re challenged to sit with the unknown, and to ask new and unthinkable questions that we would not have dreamt of asking even the week before. Life is messy.

It was in this state that I engaged in a conversation with a friend yesterday. She listened, didn’t need to fix anything, and I know she’ll support me in my new direction. She can sit in the messy, the unknown. To her and to others I say thank you.

While it is the mystical that draws me into soul exploration, it is the practical that grounds me in the here and now. It is a desire to always improve who I am, and to not settle for less than who I can be in my fulness. It is my understanding and my life experience that keep me grounded in the fact that there are people on the margins of life, and that they struggle to have their voices heard, accepted, and acknowledged. I will not forget you. I cannot forget you because my waking reality—struggling to see, to hear, and to negotiate a crowded room—calls me to that remembrance. It is the struggle that I will always share with those who are disabled.

I’ll admit that walking a new life path is daunting. Can I do it? Will I fall and mess up? Will I be able to learn to discover new ways of being along this new path? In a way, I’m putting away the sledgehammer that I’ve used to break down walls that have limited me, and others. It is time to put the sledgehammer to rest. This path calls for a peaceful tool.

I know there will be restful places to sit and reflect because I’ve always found them. What I don’t know is where all of this is going, and that is perfectly OK. I’m able to smell the new air, take it in, explore its excitement. And so, I turn my back on the old, and face something new. I wonder where this will take me? Where do you need to go?

Feb 21

Semi-Rant

Death can numb us physically, mentally, spiritually, and emotionally. Most people don’t die without it affecting others with some level of trauma. Think about it. Even the person who dies in their sleep can have a partner wake up with a dead body beside them. There is trauma in this. 

While birth can be a joy-filled time, death isn’t. Sure, we might be thankful that they are out of pain, no longer suffering in other ways, or “at peace.” Death leaves the living with the reality of feeling and doing what we need to do to get through it and move forward. We can behave poorly after a death. Remember, we’re in no condition to think straight. Whether we realize it or not, we’re in the twilight zone. We’re not ourselves. We’re in the death bubble. Sooner or later, we’ll need to exit that bubble and get back on the conveyor belt of life.

Getting through the process is about reconfiguring our new lives to work without the loved one, or not-so-loved-one, in our lives. We’ll miss the former and think we can get on just fine without the latter—until something doesn’t go quite right. Then we’re facing the whatever it is and making it right. 

Anything can happen. Parents don’t think kids are grieving correctly; kids feel or think a parent should get over it; grandkids miss the grandparent who the parent is celebrating the death of, and they are numb to themselves and each other. 

All of a sudden, rifts develop; people once invited are uninvited, and people fight over petty things. What was not resolved in life becomes a nightmare for those who remain. There is more numbing, and it seems that we no longer notice the real pain. By now it might be all about anger, loss, and a grief we can’t speak of because those we thought would be there to hear our pain ran out on us to escape into their own pain. It’s a cycle, and it only resolves itself when someone says to themselves or others, “ENOUGH!!!!” 

If we’re lucky to have someone with the insight to call out the crazy, we might just get to a new place with it. That person may be you. You may be the only fix that there is. The reality of it all is that we can only fix ourselves. The great personal thaw means that you engage with yourself in the healing process. This can be the greatest challenge of all: to heal when no one else gets the repair work you are doing. 

In the seven years I’ve been dealing with my own grief and loss, and the pain of others, I’ve seen and heard some really painful stuff. I’ve asked myself why people move on too quickly and don’t do the work that would lead them to true peace, and then I think about the crazy of it all. 

Is it possible to have burnout from grief? Can someone burn out from too much pain? I think they can. I recall a health course I took in the fall semester of my second year of university work. I was sitting next to two guys as we all filled in the stress scale the professor had distributed. In the period of one year, I’d gone through two significant family deaths, made a major life change, and had checked a few other boxes. I looked at them; they looked at me, and all three of us realized that our scores were much too high to be normal. It was the nonverbal, silent signal of knowing. I wasn’t in my right mind. What was I doing there? At the end of that year, I moved home, found a therapist, and began to sort out my head. Looking back on all of it now, I realize that I’d had enough physically, spiritually, emotionally, and mentally. I was so deep into grief that I didn’t know how deep I was into grief. I came out of it, and now understand the crazy. 

I believe that one of the things that saves us from yelling at others to get over it is that when we do the work of getting through it, we’re gifted with the understanding of the hard work that must be done. We’re able to hold compassion for the crazy place grief, loss, trauma, and burnout can carry us into. 

The work begins with a desire to pop the bubble of denial, and to seek for better ways of facing our pain. 

For some people, death is death: it is what happens at the end of life. It is what it is. For another group of people, death opens up a need to make sense of the existential mystery of why it might have happened. For yet a third group of people, they engage the theodicy mind trap. I’m sure there are other possibilities. It is to theodicy that I’ll turn my focus. 

Is it any wonder people turn from God when God gets abused? The use of theodicy— a way of explaining why God allows evil to happen—to explain loss, pain, and stuff that happens for unexplainable reasons can drive a soul mad. I understand that there are people who abuse, and even purposely damage, their own children. It is wrong, and I hope that such abusers are discovered and dealt with, and that their children are given a chance to live better lives. Children don’t sign up for mistreatment. Theodicy is a form of mistreatment, and is spiritually disrespectful to all human beings. Higher powers do not create death to teach someone a lesson, take someone because they are needed someplace else, expect us to bypass the grief process and focus on an afterlife, or cause intentional suffering (for instance, the birth of a disabled child). 

Tragic things happen, and we must face them honestly. Nature does strange things to bodies, and we must accept nature doing its thing. The human gene is a tricky thing, and we can be brought up short by the screwy things our genes do. Early in life I had to learn that nature behaves in unruly ways. It just is. That being said, I’ll return to the stuff that can be controlled. 

I can, and need, to control my own behavior. I can decide to behave kindly towards others in pain. As difficult as it is during the process of grief, loss, painful experiences, and whatever else I experience, I can choose to apologize, show compassion, and make amends as needed. In the end it takes less energy to show kindness to myself and others. It also keeps my brain well balanced. I’ll cry, scream, get angry, look in the mirror, face down the monsters, and make peace with it all. In the long run, that will serve me well.

This has been a nice semi-rant. I hope you learned from it.

Mar 12

Unending Story

A Place for My Heart

Towards the end of my work in Apeldoorn, I became aware of my personal space in the house. We moved into this house in March of 2011, and I was busy with the details of settling in and making sure our things had places. The upstairs rooms are small and it was a challenge to really know which space was best for what.

The downstairs is an open room that is “our space,” with the kitchen at one end and the other end for general use. We both like to be in the kitchen and we are learning to share the space—happily. It is nice to have a guy who wants to cook with me. The space where I work is a tiny room that has many Gail-type things within. Recently this space has seemed a wee bit cramped. Cramped isn’t good for the soul. What can I do?

Slowly, over the past month, I began to notice the lack of a feminine place for me to exist within. I’ve considered creating a dressing table where I could keep all the things that make my head pretty. The problem is that there isn’t the space to place such a table.

So Hubby will make the table, and when he really gets down to the business of design (which I’ve already done in many ways) and creating, the finished product will be wonderful. It will be nice to have the table when it is completed.

Places of Passion

As a beautiful place for me is a must, so is a place that sparks life as essential as breathing. For me, my work is such a place. I find that I become a joyous and happy soul when I think in terms of what I love and do well. I find myself exploring questions that, in turn, lead to other questions and cause me to wander over vast areas of space. I dip into one space, only to find a jumping-off point for another. The “what if” and “what about this, or that” span into hours of discussion time with another person and cause me to tingle and feel a type of life that exists nowhere else. This type of knowledge energizes me in a way that nothing else does. When I am not able to have this in my life, I find life to be dull, as if a vital ingredient is missing. I knew at a young age what I wanted professionally, and was not able to reach that goal until I was in my 30s. At 16 I was fortunate to meet, and know, someone who had returned to graduate school to pursue her master’s degree at a later age. As we spoke, and I discovered what it was she was doing, I started asking questions that we could talk about. She would tell me about what she was learning, and I discovered that I had valid opinions about what we were discussing. Psychology fit my brain in ways that studying history did not do for me. I was alive. I was also hooked.

I found that one of my early areas of interest was working with people of differing cultures; at first it was those with disabilities. How could the family system be strengthened when disability rears its head within the family walls? My interests have branched out to those of other nationalities and cultures and exploring the richness within. What was someone’s experience as a Peruvian or Mexican? How do they experience life in a different country?

During my graduate period, I began to explore other areas as well as the above-mentioned ones. Art and creativity and music were a special focus. I became aware of using journals and the power of writing it all down. I also began to understand the traumas that people endure and how they cope with them. Ultimately, my love of disability issues has remained firm. There is power in freeing the person who may be told “You can’t because you are […].” I believe that many things are possible. It is all about finding a path and making that journey—and it will take courage. This journey will change everything.

The Journey Within

There is something about the journey, and exploration of a person’s journey, that ignites excitement within my heart and soul. An “aha” moment when a light switches on, the click when a missing piece of the puzzle is found, the discovery that what one believes can change, or the finding of a new path. I want to know what the next bend in the road brings me and where the journey is headed. Change is exciting and challenging.

Respect is also a vital component. Someone is letting me into their inner space. I am allowed to walk with them through hardships and triumphs. If there is a failure, I need to respect and honor the process of their recovery and rediscovery. Compassion and respect can be a powerful ally in the healing process. It is sorrow I feel when someone decides to not go further on the path that would lead them to a better place in life, BUT at some future time, they may resume the journey. Life is full of uncertainty and how we each face the unknown says so much about us. If we each had a crystal ball, would we use it? If we saw the challenges ahead, would we still choose to go down that path? Life is about learning and meeting the challenge. “If only I had” kills the spirit. “If only I had” deprives each of us of what we can learn and gain from the mistake.

Part of my personal journey in life has been my own process of learning to ponder slowly. Learning that I don’t have to get anywhere fast has been a nice consequence of aging. Now I am prone to concluding things for myself in my own time. I may sit on something for some time before grokking it in proper fashion. My brain and soul are on a quiet and slow path to understanding the needful things. I wasn’t always as slow to conclude as I am now. The time of youth was far different. I cherish where I am and what can come of it. Who I am during my 50s will be a far cry from what I will have learned by 75 and who I will have become. If I haven’t changed and become a better person, what is the use of life? Maybe there will be one younger than myself who gains from the wisdom I’ve gathered. Someone who will say to me “You are so wise,” and I will have to say “I’ve come by this through imperfection and making both wise and stupid choices.” Maybe I’ll laugh at the thought that I’m thought to be wise. Only time will tell.

Places of Mystery

Isn’t that what all this is about? Living our best, leaving a legacy for others? Making the world a better place because we’ve touched it and made a change somewhere during our existence? Isn’t life all about doing good and not even knowing where the good leads to? You never know what you can say to reach out and inspire someone along the way. Because of what you say or do, someone might be inspired to take the first step towards a new beginning. I heard of such a situation just this afternoon: something my husband did has changed someone’s life for the better. He had no way of knowing that his willingness to be so open would help someone else reach out and move down the path of life.

I’m excited because someone is headed to a new place of discovery and mystery that will bring change and fulfillment. I’m alive!!!!

Dec 31

Radical Compassion

In 1958 there was a pandemic, and my mother happened to be pregnant with me. It was only a slight case; she didn’t even know she’d had rubella until after the fact. It was during an era when medical abortions were done if the parents and the doctors were willing to do so. My mother told me that they didn’t ask, so the docs didn’t offer. Nature took over and produced a child who had been conceived to be healthy, but who became injured while still in the womb. That is what nature does.

In talking with my mother about this issue, she once told me that she could understand both sides of the argument and why a woman would choose one or the other. From her I learned that the issue around the health of an unborn child, or the termination of that pregnancy, is not an easy, cut-and-dried process. The choice to raise a disabled child came with a great deal of pain and learning, as well as tears and sorrows on all sides. Society blames and doesn’t help. My mother learned radical acceptance and radical compassion. I watched, I listened, and I learned from her.

In the past month, I have sat and watched as so many have blamed gun owners, children, the shooter, the NRA lobby, and Congress for the travesty of yet more dead kids. I hurt for the families and friends who have lost children. I am angry that people are using an act of violence to force a political solution, as well as a mental health solution, to this situation. There is enough greed and corruption to go around! There is more than enough blame that is being spread to the innocent. I want to scream “NO! STOP IT!”

I do support change. I’d like to see assault rifles, code red drills, bullying, blaming, and greed to be taken off the streets. I’d like to see respect and support become common. I’d like to see corporations become responsible for what they are putting on the streets. I‘d like to see violence in video games and films done away with. I’d like to see everyone have access to good mental health care and not just a set number of visits per year. I’d like to see education and understanding for all.

I’d like to see scientists search for effective medication that could reach into the abyss of a shooter’s mind and allow that person to be healed with both medication and talk therapy. It is dark in that mind. It is lonely in that mind. To be able to befriend such a person would be rare. Why? Because what such a person thinks is so black, so far from the norm, so chaotic that most professionals can’t—or won’t—even go there. I’ll venture to speculate that the person owning the thoughts is just as terrified of going there. What I’m talking about is a radical compassion for others.

Few have been able to show such compassion because few are the Buddha, Mother Teresa, Jesus Christ, or others. To be part of that universalizing place takes a lifetime of journeying. However, each of us is capable of listening with love and compassion. You do it as a child when you show sorrow for your friend’s pet that passed on. You do it when you spend time listening to a friend sharing grief. You do it in a darkened theater when you let out the buried pain that you can’t show for yourself or someone else, but can show for the character in a film. You do it when your best friend tells you that they are coming out, and your love for them takes you to new places of joy and acceptance for who they are. You do it when you ask “Why?” and come away with only more questions, but a determination to find one solution and you join a cause. In joining, you move to radical compassion, when you sit down in a room and listen to the others who believe differently than you do. You do it when you realize that “they” care just as much as you do. You do it when you take a hand and find a way to work together for peaceful solutions.

I saw it in my mother as she was faced with how society treated her two disabled daughters. I saw it in her heart when she wept and yet didn’t lash out at others for the treatment that came to her children because other parents didn’t teach the same values of love and acceptance.

I want to see more kids step up and take responsibility for the things they can do. I want to see those of us who are older applaud the courage that we are witnessing and show love and compassion for the process they are initiating. I’d like to see each of us stop and think about the words we speak and the actions we take in our daily lives, and how they might affect others. I want to be on the path of radical compassion with my fellow human beings. Right now it feels sparsely traveled. I think back to my mother, and if I can do what she was able to do, I’ll be doing well. Join me on the journey. It isn’t an easy journey, but my mom thought it was worth doing, and so do I.

Dec 20

Sneakiness Is Happiness

Today has been very hot. I like the heat because it means that the sun is out and the sky is blue. The only bad thing about the heat is that sticky, humid feeling. Today I had to be out in the heat and it was wonderful!!!!

Why? Well, it was because of all the nice things that happened while I was out and about and doing the many things that I had to get done. I was out alone with Myrtle Mae. Myrtle Mae is a good sidekick. “She” keeps me safe from others. I’ve also noticed that people are really nice to me when I’m buzzing around with my stick. (Myrtle Mae is featured in stick magic.)

There are so many things that are different about being a person with low vision. Some things are just more complicated and time consuming than they are for a fully sighted soul. People being nice to me made me feel OK about walking around in the heat. So to balance my happiness, I find myself listening to one of the most pessimistic guys of rock: Don Henley. I like Don.

There were things to do, like the veggie run and the bank. I like getting this stuff done—but there was also laundry to do before I could do the veggie run.

I tell you all of this because the man did something wonderful for me. He can be sneaky in phases because my sight just isn’t good enough to see what is going on in my tiny room that I use as an office. I didn’t see the first phase at all.

My office is filled with very “Gail”-type things, two of which are parasols that are mounted into the corners of the ceiling. Once they were up I thought, Wouldn’t it be cool to backlight them? I haven’t thought about it for some time. He has.

While I was out and about, he got to work and gave me a very beautiful surprise to come home to. Yup, he backlit my parasols!!! So, even though it is hot out there and in here, I’ve got the tiny lights on. I couldn’t resist as it is so pretty to have the soft light around me.

Being nice pays off not because it has to—it just does. There is something about generosity that is contagious. So, when I’m out and about, I smile, and others say hello to me. Why?

I think that is because we, as humans, crave positivity in ways that will never be fully understood. I, for one, have no desire to study this, as it takes some of the magic out of the process. I will studiously avoid the research on the topic. Some things are better enjoyed and left alone.

I think I’ll go find someplace cool to enjoy the evening. I also must switch to something other than Don Henley. Before I do—remember to smile and see what you get in return.